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Health

ALS advocate and TikTok star Brooke Eby dies at 37

Brooke Eby, the Salesforce manager who documented her ALS journey with humour for hundreds of thousands of followers as 'limpbroozkit' and founded the ALStogether support community, has died at 37.

By Sarah Whitfield · · 1 min read

Brooke Eby, the ALS advocate who documented her life with the terminal disease for hundreds of thousands of social media followers under the handle “limpbroozkit”, has died at 37.

The ALS Network announced her death on 1 October, saying Eby “changed how countless people understood ALS”. ALS is amyotrophic lateral sclerosis, a terminal neurodegenerative disease also known as Lou Gehrig’s disease. https://www.usatoday.com/story/life/health-wellness/2026/10/02/tiktok-star-brooke-eby-als-journey-dies-at-37/92054323007/

Eby was diagnosed in March 2022 and spent four years pairing unflinching candour about the disease’s progression with a sharp, self-deprecating wit, drawing an audience of more than 500,000 followers across platforms. https://www.thatericalper.com/2026/10/02/brooke-eby-als-advocate-and-alstogether-founder-who-met-her-diagnosis-with-humour-dies-at-37/

In 2023 she founded ALStogether, an online peer community connecting people living with ALS and their caregivers, which was integrated into the ALS Network in 2026. She kept working at Salesforce, where she had been a business development manager since 2016, adapting her setup as her condition advanced. https://en.wikipedia.org/wiki/Brooke_Eby

Her advocacy was recognised in 2026 with the ALS Network’s Advocate of the Year award. Salesforce CEO Marc Benioff paid tribute on X, calling her “an amazing warrior”. https://www.usatoday.com/story/life/health-wellness/2026/10/02/tiktok-star-brooke-eby-als-journey-dies-at-37/92054323007/

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